This information is shared to support learning and development of services; if you would like us to include any additional resources then please contact us
Please note: The national information shared below is to support developments of clinical services; clinical teams should always refer to local policies and pathways within their organisation.
National Resources
The NICE transition guidelines published in February 2016 to support the transition from children’s to adults’ services for young people using health or social care services
A review of the barriers and facilitators in the process of the transition of children and young people with complex chronic health conditions moving into adult health services. Published in 2023
This factsheet for parents published in 2018 and most recently reviewed in 2024 highlights the importance of transition to adulthood in the lives of children with learning difficulties in England.
The Ready Steady Go Programme is aimed at any child over 11 with a long term health condition and their families gain knowledge and skills to manage their condition into adulthood. Published in 2020
An NHSE funded project undertaken by the South West region of Parent Carer Forums to understand the transition experiences of children and young people with Special Education Needs and Disabilities (SEND)
A guide published in 2023 by Together for Short Lives aims to help parents think about the different elements of transition and to provide tips and links to other resources to help the process feel as smooth as possible
A review published in 2014 looked at the arrangements made for children with complex health needs as they move from children’s to adult services. A summary of the findings can be found in the this report.
WellChild have published a transition reference guide and told to support health and care professionals to improve practice for all children and young people transitioning to adult services. Published in 2023
The Royal College of Paediatric and Child Heath published a set of standards in 2018 to provide guidance to drive improvements in communication, collaboration and continuity across care pathways
Alder Hey Children’s NHS Foundation Trust Guidance
Alder Hey Children’s Transition Pathway describes the 10 important steps for young people, their parents, and professionals as a young person moves from children to adult services.
Upper GI & Oesophageal Atresia
The TOFS website has a great of useful information for both patients and healthcare professionals supporting patient who were treated for oesophageal atresia and other related conditions:
Click below for other resources related to children’s surgery: